Introduction

Muscular Dystrophy (MD) is often associated with physical limitations—but the emotional weight it carries is just as real. I’m Anshuli Singhal, a software engineer living with MD for 15 years. Once a top student with big dreams, I had to reimagine my path when life threw this challenge my way. This article isn’t just about my condition—it’s about hope, adaptation, and thriving emotionally while living with a progressive disease.

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The Emotional Side of Muscular Dystrophy

Living with MD can often feel like a silent emotional battle. As your physical abilities slowly decline, you’re also processing loss, fear, isolation, and uncertainty. People often notice the wheelchair but overlook the inner strength it takes to smile, to study, to work, and to keep going.

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My Journey: From Top Student to Tech Professional

From an early age, I was a high achiever. I loved solving problems, coding, and learning new things. Even after being diagnosed with MD, I didn’t give up on my academic goals. I graduated as a software engineer and now work in the tech industry—something that once felt impossible during the initial years of diagnosis.

But beneath the success story, there were emotional battles: dealing with slow muscle degeneration, missing social events, and wondering if my body would keep up with my mind.

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Coping Mechanisms That Worked for Me

1. Accepting the Diagnosis and Redefining Success

Acceptance didn’t come overnight. At first, I saw MD as a barrier. Over time, I began to see it as a lens through which I view life differently—more mindfully, more appreciatively.

My Tip: Redefine success on your own terms. Your pace is valid. Your efforts count.

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2. Prioritizing Mental Wellness Alongside Career

As a techie, it was easy to get lost in logic and code—but I had to pause and acknowledge my emotional health. Burnout and frustration were real. Therapy helped me learn how to cope constructively.

My Tip: You can be high-functioning and still need emotional support. That’s not weakness—it’s wisdom.

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3. Building a Strong Emotional Network

My parents, colleagues, and a few close friends became my emotional lifeline. I also found peers online who had MD and understood what I was going through.

My Tip: Open up to someone you trust. You don’t need many people—just the right ones.

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4. Tech Tools That Support Emotional Resilience

Being in tech, I naturally turned to tools that helped me mentally:

• Journaling apps like Day One

• Meditation apps like Headspace

• Productivity tools like Notion to stay focused

• Wheelchair-friendly smart home gadgets to feel more independent

My Tip: Let technology assist your emotional well-being—it’s more than just convenience; it’s empowerment.

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5. Staying Purpose-Driven in Life and Work

Despite the physical challenges, I found strength in purpose. Every line of code I write, every person I inspire through my story—it gives meaning to the struggles I face.

My Tip: Purpose anchors emotions. Whether it’s work, advocacy, or art—let your passion drive you.

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Online Communities and Mental Health Resources

Sometimes, the most meaningful support comes from people you’ve never met in person. Online forums and MD support groups helped me find relatable voices and emotional clarity.

Helpful Platforms:

• MDA Community Forums

• Reddit – r/MuscularDystrophy

• Facebook – MD Support Networks

Free Mental Health Resources:

• 7 Cups of Tea (emotional support chat)

• BetterHelp (offers discounted or sponsored therapy)

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Final Thoughts: Growth Over Guilt

Living with Muscular Dystrophy doesn’t mean you stop growing. It means you grow differently. Yes, it’s hard. Yes, some days feel heavier than others. But through it all, I’ve learned that emotional strength is not about never breaking down—it’s about getting back up every time, even if it takes a while.

To everyone out there living with MD or supporting someone who is—your feelings are real, your fight is brave, and your future is still bright.

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FAQs

Q1: Is it normal to feel emotionally overwhelmed with MD?

Absolutely. Emotional overwhelm is common with progressive conditions. It’s okay to seek therapy, community, or even journaling to express what you’re feeling.

Q2: Can I still have a successful career with Muscular Dystrophy?

Yes. With the right support, adaptive tech, and mindset, many people—including myself—build fulfilling careers despite physical limitations.

Q3: How can I help a friend or family member cope emotionally with MD?

Be there. Listen without judgment. Celebrate small wins with them and encourage open conversations about their mental state.

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