(Contributed by Anushikha Singhal – Banker)
Introduction
Living with Muscular Dystrophy, specifically Limb-Girdle Muscular Dystrophy Type 2 (LGMD2), for the past ten years has been a journey full of challenges, resilience, and determination. My name is Anushikha Singhal, and I work as an Operational Manager in a reputed government bank. Despite having difficulties in walking fast, climbing stairs, and dealing with muscle weakness, I continue to work daily. In this blog post, I will share my experiences of managing my job while navigating the struggles of this condition.
Understanding LGMD2 and Its Challenges
Limb-Girdle Muscular Dystrophy Type 2 (LGMD2) is a progressive disorder that affects the muscles, particularly around the hips and shoulders. Over the years, I have faced several mobility-related issues such as:
- Difficulty in walking at a fast pace
- Challenges in climbing stairs
- Weakness in limbs, making prolonged standing or carrying heavy objects tough
- Fatigue due to prolonged activities
Despite these limitations, I have never let my condition define my professional aspirations.
My Daily Struggles and Adaptations at Work
1. Commuting to Work
One of my biggest challenges is reaching the office daily. Since I struggle to walk fast, I plan my commute carefully. I avoid crowded public transport and prefer vehicles where I can sit comfortably. Using ramps, elevators, and accessible transport options has been a lifesaver.
2. Managing Office Tasks
As an Operational Manager, my job requires a mix of desk work and physical movement within the office. To make my workspace more accessible, I have:
- Ergonomic seating to reduce strain on my muscles
- Digital tools to minimize unnecessary movement
- Colleagues’ support for tasks that require physical effort
3. Navigating Stairs and Long Walks
Many office buildings are not fully accessible. Since climbing stairs is difficult for me, I take elevators whenever possible. When elevators are not available, I take my time, ensuring I don’t exert myself too much. Pacing myself and taking small breaks helps me manage my energy levels.
4. Dealing with Fatigue
Muscle fatigue is common with LGMD2, making long working hours challenging. I have developed strategies to cope, such as:
- Taking short breaks between tasks
- Using energy-efficient techniques, like avoiding unnecessary movements
- Prioritizing work to focus on high-impact tasks first
Support from Workplace and Colleagues
I am fortunate to work in an environment where my colleagues understand my condition. Their support has been crucial in making my work easier. Some of the ways my workplace has accommodated my needs include:
- Allowing me to take flexible breaks when needed
- Assigning desk-based tasks where possible
- Providing access to elevators and ramps
Having a supportive team not only helps me physically but also boosts my confidence and motivation to continue working.
Overcoming Mental and Emotional Barriers
Living with a disability is not just a physical challenge; it also affects mental well-being. At times, I have felt frustrated or demotivated, but I have learned to stay positive by:
- Practicing mindfulness and meditation
- Focusing on what I can do, rather than what I cannot
- Seeking support from friends and family
- Connecting with others who have Muscular Dystrophy for inspiration
Tips for Others Facing Similar Challenges
For anyone dealing with mobility impairments and working a full-time job, here are some strategies that have worked for me:
- Plan ahead: Arrange your commute and office space to be as accessible as possible.
- Use assistive tools: Ergonomic furniture, voice-to-text apps, and digital tools can reduce physical strain.
- Take breaks: Listen to your body and rest when needed.
- Seek workplace accommodations: Do not hesitate to request reasonable adjustments.
- Stay mentally strong: Surround yourself with positive people and stay determined.
Conclusion
Despite the challenges of Muscular Dystrophy, I continue to work every day with determination and passion. My journey is a testament to the fact that disabilities do not define our potential. With the right mindset, support system, and workplace adjustments, it is possible to lead a fulfilling professional life.
I hope my story inspires others who are facing similar challenges. If you or someone you know is dealing with Muscular Dystrophy in the workplace, remember – you are stronger than your struggles. Keep pushing forward!
Do you have any questions or experiences to share? Feel free to leave a comment below or connect with me on AdaptiveLifeGuide.com